Date Posted: 20th Jul 2021 at 8:39 PM
Views: 110
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If you just want cc updates, see the post after this one. This is more of a life update to provide context for my absence and what can be expected moving forward. tl;dr at the bottom.
Well, it has been a very long time since I gave any kind of update, because the road to recovery from intracranial hypertension was...not what I thought it would be. I was originally told it would resolve in like, 3-4 months, but it took over a year and a half. I had to get two more spinal taps (last one landed me in the ER), and was put on two more medications that made me super tired and weak all the time. I got referred to a neurosurgeon, who referred me to a neuroophthamologist, who took me off of two of the three meds. The remaining medication ultimately made me lose 70 pounds over the year and a half I was on it.
Like, less than a month after feeling like I'd finally recovered from IH, my parents brought home covid, and despite being 23, I was far from being asymptomatic. Nothing hospital-worthy, but it put me through the ringer. After that I had a standard appointment with my GP, and he found that my kidney function was abnormal. Ultimately I got referred to a nephrologist, who has diagnosed me with stage 2 CKD and metabolic acidosis. Based off of the research I've read, it seems possible that it was caused by the final medication I was on (I was still on it when I did my labs), but ultimately it's up to the nephrologist to come to that conclusion, so it's a waiting game for now.
I'm not sharing all of this for pity, but as context as to why I didn't update or say anything for so long. This whole fiasco has been so much more draining and exhausting than I ever could have imagined it would be, and after updating a few times, the idea of further updating was just depressing when it would be a continuous stream of 'I'm still sick guys'. In hindsight, I wish I had just said I was going on an indefinite hiatus. I can't say I'm really back 'for good' yet, because I don't really know what to expect from this CKD shit over the next several months, and I'm still trying to figure out my ADHD meds. I'm really, really hoping to be able to return to school this fall, but I also have little idea of how that's going to go either.
tl;dr: recovering from intracranial hypertension took way longer than expected, and while I have recovered from it, I got covid and later diagnosed with stage 2 CKD and metabolic acidosis, possibly as a result of a medication I took for intracranial hypertension; the CKD symptoms don't disrupt my life, so I'm really hoping to go back to school this fall
This is already super long, so I think I"m just going to put cc updates into another entry.
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